Whitepaper
Data Return Series: Installment 1: Patient Perspective and Logistical Challenges
Introducing our Data Return Series, created by our Chief Strategy Officer Joseph Kim in collaboration with Legacy Health Strategies.
In our 1st installment, learn why returning patient data was so challenging in the past and the impact it can have on patients and trust. Check out the comic to get inside the patient's mind on the importance of data return!
- Data Return
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What you’ll find inside
- The hidden cost of silence after a trial ends - explored through a patient's perspective on waiting for results that never come
- Why returning data has been so hard - unpacking which excuses actually hold up and which don't
- The real operational barriers sponsors face - from rolling enrollment timelines to misaligned site incentives
“In simple terms, sites are currently not compensated to do the work of parsing data into individual files andreturning them to patients.”
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